Balancing indigenous principles and institutional research guidelines for informed consent : a case study from the Peruvian Amazon

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dc.contributor.authorSherman, Mya
dc.contributor.authorBerrang-Ford, Lea
dc.contributor.authorFord, James
dc.contributor.authorLardeau, Marie-Pierre
dc.contributor.authorHofmeijer, Irene
dc.contributor.authorZavaleta Cortijo, Carol
dc.date.accessioned2013-08-15T13:36:06Z
dc.date.available2013-08-15T13:36:06Z
dc.date.issued2012-11
dc.description.abstractBackground: Current literature emphasizes the need to implement informed consent according to indigenous principles and worldviews. However, few studies explicitly address how informed consent can be effectively and appropriately obtained in indigenous communities in accordance with research ethics guidelines. Methods: This article uses participatory rural appraisal methods to identify and characterize community preferences for informed consent in two indigenous communities in the Peruvian Amazon, using Canadian federal research regulations and McGill University's Research Ethics Board as a case study to examine where institutional ethics guidelines constrain or support culturally appropriate notions of informed consent. Results: The study emphasizes the importance of tailoring informed consent procedures to community circumstances. Although both communities in this case study are located in the Peruvian Amazon, there were important distinctions between them, such as gender dynamics and social structure, which profoundly affected informed consent procedures. It is also important to consider the balance of collectivism and individualism at a community level in order to determine the role of individual and community consent. Conclusion: Research ethics guidelines generally allow for this contextualized approach. However, regulations still have the potential to constrain indigenous informed consent due to content requirements for informed consent forms, limited flexibility for modifications in the field, and requirements for individual consent.en
dc.formatTexten
dc.format.extent1 digital file (p. 53-68)en
dc.format.mimetypeApplication/pdf
dc.identifier.citationSherman, M., Berrang-Ford, L., Ford, J., Lardeau, M.P., Hofmeijer, I., & Zavaleta Cortijo, C. (2012). Balancing Indigenous Principles and Institutional Research Guidelines for Informed Consent: A Case Study from the Peruvian Amazon. AJOB Primary Research, 3(4), 53-68.doi:10.1080/21507716.2012.714838en
dc.identifier.issn2150-7724
dc.identifier.urihttp://hdl.handle.net/10625/51515
dc.language.isoen
dc.publisherTaylor & Francisen
dc.subjectAMAZONIAen
dc.subjectETHICSen
dc.subjectETHICS COMMITTEESen
dc.subjectIHACCen
dc.subjectINDIGENOUSen
dc.subjectINFORMED CONSENTen
dc.subjectPERUen
dc.subjectRESEARCHen
dc.subjectRESEARCH SUBJECTSen
dc.subjectINDIGENOUS PEOPLESen
dc.titleBalancing indigenous principles and institutional research guidelines for informed consent : a case study from the Peruvian Amazonen
dc.typeJournal Article (peer-reviewed)en
idrc.copyright.holderTaylor & Francis Group, LLC
idrc.dspace.accessIDRC Onlyen
idrc.noaccessDue to copyright restrictions the full text of this research output is not available in the IDRC Digital Library or by request from the IDRC Library. / Compte tenu des restrictions relatives au droit d'auteur, le texte intégral de cet extrant de recherche n'est pas accessible dans la Bibliothèque numérique du CRDI, et il n'est pas possible d'en faire la demande à la Bibliothéque du CRDI.en
idrc.project.componentnumber106372004
idrc.project.number106372
idrc.project.titleInternational Research Initiative on Adaptation to Climate Changeen
idrc.recordsserver.bcsnumberIC01-3527-50
idrc.rims.adhocgroupIDRC SUPPORTEDen

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IDRC Research Results / Résultats de recherches du CRDI
2010-2019 / Années 2010-2019
Climate Change and the Health of Indigenous Communities / Changements climatiques et santé des autochtones